Little Zola has a rare genetic condition known as Ehlers-Danlos syndrome, or EDS. Her family wasn’t aware of her condition in 2018, when she nearly lost her life after a series of hospitalizations resulting from EDS. Eventually Zola began telling her parents about her near-death experience. Zola’s mother, Brittan, told Inside Edition Digital, “She just asked, “When can I see God again?’” Zola’s family started the non-profit Zola’s Zebras, to raise awareness of rare medical conditions.

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